Wednesday, May 30, 2007

Lauren is feeling much better! Thank you all for the love and support. The pneumonia has resolved and she is back to her cute little self again.

Work with the foundation has been dramatically changing in recent weeks.
We would like to welcome on board our new employees:
Trish Cummings, Marketing Director
Betsy Hinson, Financial Director
Lori White, Communications Director

You guys will be receiving emails from these ladies from time to time, so please know that their emails are valid and are supported by Andy and I.

We also have moved the foundation from our home to a new office location. My husband has graciously donated space for us to use in the upstairs of his office so that we all have accessible work space and our own computers! Thank you so much community for the many items that have been donated to get the office operational.

These changes are bringing much needed organization to the cause. God is truly blessing the effort and we are incredibly grateful for His continued guidance. Please pray for the LHF staff as we make these transitions. I am so eager to see what God has in store for us as the journey continues! :)

Hope that your kids enjoy their summer....I know mine sure are excited that this is their LAST week! :)

May God keep you safe during your vacation travels.
Cindy :)

Monday, May 14, 2007

Happy Mother's Day!!

Lauren decided to give her mommy an unforgetable Mother's Day. We ended up spending the last few hours of mother's day in the emergency room.

Lauren developed a little tummy bug last week with fever. Even though the stomach bug resolved itself in just a couple of days, Lauren developed a fever on Saturday. This was our first indication that there must be a secondary infection to the virus. With the progression of her disease, her brain does not do a very good job of relaying to her gag reflex that there is fluid close to her airway. When she throws up, fluid is able to "leak" into her lungs causing bacteria to form an infection. Unfortunately, the vomitting typically leads to aspiration pneumonia.

The pneumonia was confirmed last night. Lauren's fever last night caused her to have a seizure which lead to further vomitting. This episode of vomitting was a little different than in previous occurances. The volume was much larger as if she had not processed her formula all day. This is something new that we have not faced before. It seems like her stomach is not unloading as it should. Maybe if there are other Sanfilippo parents who have already experienced this, you could provide us some insight.

I do want to document for parents out there...that our suction machine has been a life saver....literally! If you have not made the investment in such a device, please take our advice and add this machine to your medical supply list. As your child advances in the disease, this will be a most have to clear secretions.

Thankfully the addition of 2 antibiotics (Cleocin and Omnicef) appear to be doing the trick for the pneumonia. Even just 4 doses appear to be making a difference.

Even with the struggles of the day, I am so grateful for the opportunity to celebrate Mother's Day...what a blessing! My children are the light of my life and I feel so fortunate that God has chosen to give me the honor of being mom to two of His most prized possessions!

Give your children an extra ounce of patience, love and support today! :)

Tuesday, May 01, 2007

Please pray for Isabel Jurado in the photo above. Isabel is one of Lauren's Sanfilippo friends... living here in S.C.

Isabel had her first seizure tonight and I am sure her family would grately appreciate your prayer support. There is nothing like feeling the comfort that only God can provide.

Thank you so much!